This is a long and thin course that involves research approved by the University of Plymouth's ethics and integrity committee, funded by Action for AT. It will use this platform to work with a group of children, young people and families with and affected by ataxia telangiectasia (AT) and key stakeholders to co-design and evaluate novel complex healthcare interventions for children and young people with AT. In doing so it will help to coproduce contributions to future editions of healthcare guidance - specifically for non-medical management of AT.